tag:blogger.com,1999:blog-4284577738924004196.post4584832610264621507..comments2023-12-08T04:44:39.932-05:00Comments on Fibrinogen Amyloidosis: Clinical Trials Update (including CPHPC)Davidhttp://www.blogger.com/profile/00594087789704878033noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4284577738924004196.post-44688316353688924482013-01-23T07:23:32.801-05:002013-01-23T07:23:32.801-05:00David - Thanks for the reply. I wonder how we get ...David - Thanks for the reply. I wonder how we get this more traction in the states? Sciencedaily.com is a good web site for posting scientific studies. They have a health section. We need to get the research community on amyloidosis to get their material to a wider audience. <br /><br />Pete<br />pwirth2@verizon.netAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4284577738924004196.post-43139795726140491932013-01-17T23:58:33.705-05:002013-01-17T23:58:33.705-05:00Pete, the 2010 study is the only published one inv...Pete, the 2010 study is the only published one involving CPHPC I am aware of, but there are patients (like Nicola) participating now in another study of CPHPC effectiveness being done by the National Amyloidosis Centre in London. It's not really a clinical trial, per se, because it's not a double-blind study.<br /><br />I couldn't find anything about this current study with a quick search of the NAC web site (http://www.ucl.ac.uk/silva/medicine/amyloidosis/nac), so anyone interested would probably need to contact the NAC to find out more. Unfortunately I don't think we'll be seeing CPHPC in the US any time soon unless a major pharmaceutical company gets involved.Davidhttps://www.blogger.com/profile/00594087789704878033noreply@blogger.comtag:blogger.com,1999:blog-4284577738924004196.post-7464891836445991092013-01-17T21:47:21.238-05:002013-01-17T21:47:21.238-05:00Thanks for the info. Have their been anymore clini...Thanks for the info. Have their been anymore clinical studies involving CPHPC since the 2010 study? My wife has Al cardiac amyloidosis and is presently in remission><br /><br />Pete Wirth<br />pwirth2@verizon.netAnonymousnoreply@blogger.com