Happy New Year greetings to all loyal followers of the Fibrinogen Amyloidosis blog. Once again there isn't much for me to report, which is a good thing. I'm still asymptomatic, based on some bloodwork taken a couple of times this past year. I'm currently about three years younger than my mother was when her first symptoms appeared.
In a repeat of last year I once again attended the American Society of Hematology convention in San Diego in December, to help set up and staff a booth for the Amyloidosis Support Groups (ASG: https://www.amyloidosissupport.org/). The primary purpose of having a booth there is to raise awareness of the ASG and the educational materials available in print and online. I'd say the turnout at our booth in 2024 was similar to the 2023 turnout.
In October of this year I plan on attending the ATTR/Hereditary Amyloidosis meeting in Chicago, which is held every two years. Although these meetings are primarily geared toward ATTR patients, some of presentations are not specific to ATTR and there is always a small contingent of patients with one of the non-ATTR types, such as fibrinogen, lysozyme, apolipoprotein, gelsolin, etc.
So that's a wrap on 2024. Welcome to 2025!
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